• Unstoppable Strides: Navigating Runner's Dystonia

  • Written by: Julie
  • Podcast

Unstoppable Strides: Navigating Runner's Dystonia

Written by: Julie
Listen for free

  • Summary

  • Join Julie and JoJo for information, exploration, stories and real talk related to running with dystonia.

    Runner’s dystonia is a type of repetitive exercise dystonia that is brought on by running.

    Dystonias are a class of movement disorders marked by involuntary muscle contractions in one or more parts of the body, depending on the type of dystonia.

    Runner’s dystonia is considered task-specific, which means that it only occurs when doing a repetitive motion—in this case, the repetitive nature of the running gait cycle.

    Give us a listen if you'd like to learn more.


    You can email us here if you're interested in collaborating or contributing - runnersdystonia@gmail.com
    © 2024 Unstoppable Strides: Navigating Runner's Dystonia
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Episodes
  • The Farias - Dystonia Recovery Program

    The Farias - Dystonia Recovery Program
    Oct 24 2024

    In this episode, we do a deep dive into the Farias Dystonia Recovery Program. Benefits, Drawbacks, Cost, etc.

    The Dystonia Recovery Program (DRP) is an online platform tailored for individuals with various forms of Dystonia, including Cervical Dystonia, Hand Dystonia, Leg Dystonia, Blepharospasm, Oromandibular Dystonia, Facial Dystonia, Spasmodic Dysphonia, and Musicians’ Focal Dystonia. Developed by Dr. Joaquin Farias, this program integrates a multifaceted approach to recovery.

    Note to listeners - we do not endorse, nor are affiliated with this program. We are merely aiming to educate, share and give hope to those with this affliction. Recovery is possible.

    The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.

    You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com
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    32 mins
  • Focal Dystonia in Cyclists

    Focal Dystonia in Cyclists
    Sep 18 2024

    In this episode we talk with cyclist Chris Melia about her presentation of Focal Dystonia. Chris is a former runner and now a cyclist who recognized the signs of dystonia in 2021. She relates to us how it presented and how she detected it. Since that time, she has made much progress and this episode details what she has done to move forward. Much of what Chris shares is less about the physical and more about the mental and emotional. As always thanks for listening.

    The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.

    You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com
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    40 mins
  • Episode 2: What we've tried, what is working, what didn't

    Episode 2: What we've tried, what is working, what didn't
    Aug 7 2024

    In this episode, JoJo and Julie review all of the treatments tired for dystonia, explaining what seems to be working and what didn't work. It's a long list and NOT comprehensive by any means. Keep in mind that this is based on our own needs, tolerances and preferences - and may not work for you. In addition, some things that did not work for us may be working for you. We are all unique in our journeys through this. By all means stay hopeful that change is possible with persistence and a curious outlook.

    The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.

    You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com
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    48 mins

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