Donor Diaries

Written by: Laurie Lee
  • Summary

  • Donor Diaries is a podcast about the beauty and messiness of living organ donation. Get ready for some amazing stories about what happens when people decide to share their organs with other people, when people chose to share life. The sharing of kidneys and other organs is an incredibly fascinating topic that teaches a lot about kindness, love, and life! There are over 100,000 people on the kidney transplant waitlist today, and sadly about 13 people die each day waiting for a kidney that they never receive. One in three Americans are at risk for developing chronic kidney disease and one in nine already have kidney disease. Most don’t even know it. Donor Diaries shares unfiltered stories of kidney donation through the voices of living donors and straight talk from transplant experts who are committed to bringing the conversation of living organ donation to the forefront of society, so patients no longer have to die or suffer while waiting for a transplant.

    © 2024 Donor Diaries
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Episodes
  • German Kidney Exchange: Crossing Oceans to Give the Gift of Life
    Nov 1 2024

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    What would compel an American living in Germany to navigate a labyrinth of legal and cultural barriers to donate a kidney to a stranger? Join us as we uncover the incredible story of Will Johnson, whose altruistic journey sheds light on the stark contrasts between organ donation practices in the US and Germany. In this episode, recorded in a charming house near Munich, we reveal Germany's current regulations surrounding kidney exchange and the low rates of living donations that Will encountered in his quest to give the gift of life.

    Embark on a transatlantic journey with us as we explore the emotional and logistical hurdles Will faced, from initial inspiration to the surprising medical discoveries along the way. Hear about the practical steps of coordinating evaluations across borders, and the varied reactions from peers and workplaces in Germany. Through Will's story, we gain a deeper understanding of the personal sacrifices and triumphs that come with kidney donation, highlighting the incredible impact of what happens when we choose to love a stranger.

    Will shares: “I’ve been the recipient of much kindness and generosity throughout my life and have been blessed with good health. It felt like the right time to give back. When I learned about altruistic kidney donation, I knew without a doubt this was the perfect opportunity to do something meaningful.”

    Living Kidney Donation in Germany
    Global Observatory on Donation
    From Germany to America: A Living Kidney Donor Story | National Kidney Foundation
    Facts and myths about altruistic organ donation | Nephrology Dialysis Transplantation | Oxford Academic
    Market Design Blog | Al Roth
    Market Design Blog (second article) | Al Roth
    Berlin Kidney Exchange Article
    Living Organ Donation Donor Rate Statistics
    Connect with Laurie Lee
    GiftWorks

    Donor Diaries Website
    Donor Diaries on Facebook

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    31 mins
  • A Senior Donor’s Unwavering Generosity | EP 27
    Oct 1 2024

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    How old is too old to save a life? At the age of 74, Tom Duncan defied societal norms to become America's oldest non-directed living kidney donor, and his story will change the way you think about aging and altruism. Join us for an intimate conversation from his serene home in Ruidoso, New Mexico, where Tom recounts the journey that began with a friend's struggle with dialysis and led him to a life-altering decision. Discover the rigorous evaluation process, the misconceptions about age limits, and the emotional benefits of donation that go far beyond the physical act.

    Tom's inspiring narrative challenges preconceived notions and societal perceptions. We also delve into the Living Kidney Donor Voucher Program, which enables donors to give the gift of life while providing future security for their loved ones. Despite his loved one receiving a kidney from another source, Tom's unwavering commitment to donation shines through. This episode is a heartfelt tribute to the power of giving at any age! Don't miss this chance to be inspired by stories of love, resilience, and selfless generosity. This episode is dedicated to Ernie and David.

    Connect with Laurie Lee
    GiftWorks

    Donor Diaries Website
    Donor Diaries on Facebook

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    31 mins
  • Living Donors: Shedding Pounds to Save Lives | EP 26
    May 7 2024

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    Imagine stepping into a world where giving the gift of life is made more accessible to all. That's the transformative journey we embark on with Ruby Rorty and Rachel Watson in the latest episode of Donor Diaries, as they share the details of a program called Project Donor. Ruby, from Stephen Levitt’s Center for RISC, shares the program's genesis and its profound impact on the healthcare sector's donor eligibility dilemma. With a focus on mutable health issues, this initiative paves the way for potential donors like Rachel, who recounts her heartening story of becoming a non-directed kidney donor and how Project Donor's comprehensive resources made her life-saving contribution possible.

    Transitioning from eligibility to empowerment, our conversation reveals the personal touches that set Project Donor apart. Rachel's recount of the caring gestures she received—cards to edible arrangements—post-donation, underscores the program's commitment to holistic donor care. Echoing the significance of this support are the voices of case managers, the unsung heroes from the University of Chicago's Crown School of Social Work, who ensure a seamless experience for participants. As we celebrate both the program's success and the candid, inspiring advice shared by our guests, we're reminded of the deep connections forged through shared stories of hope, health, and humanity.

    Relevant Links and Resources

    Radical Innovation for Social Change (RISC)
    Project Donor
    Project Donor Report on American Living Kidney Donation
    Challenges and Opportunities Report Summary
    Crown School of Social Work
    Update on Victoria, first Project Donor Success Story
    Twitter Community Notes
    People I Mostly Admire Podcast
    Anti-obesity pharmacotherapy to facilitate living kidney donation
    Obesity Statistics
    Multiple Reasons for Living Donor Denial: A Single Center Experience
    Outcomes of Living Kidney Donor Candidate Evaluations in the Living Donor Collective Pilot Registry

    Donor Diaries Website
    Donor Diaries on Facebook

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    31 mins

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