Hacking Hypermobility

Written by: Two Bendy Mommas
  • Summary

  • We explore the health and wellness concerns of people on the hypermobility spectrum from diagnosis to management, asking those on the forefront of research and treatment how to help all of us on the hypermobility and connective tissue disorder spectrum including the Ehlers-Danlos Syndromes. Visit us at: https://www.hackinghypermobility.com/ Watch video episodes with closed captioning here: https://www.youtube.com/channel/UC77bi8SlAh-ZsX4z6b3cpTw Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support
    Two Bendy Mommas
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Episodes
  • 2.17 Pediatric Hypermobility
    Aug 1 2024

    Welcome back to Hacking Hypermobility! This week's episode is all about pediatric hypermobility.

    Shelli and Luna are diving into how hypermobility impacts children and teenagers, the pediatric diagnostic process, and the updated diagnostic criteria that was released in May 2023.

    Also, a quick announcement: You can now support the show directly through our website here!

    Thank you so much for joining us, and if you feel so inclined to comment, share, rate and subscribe, we would absolutely appreciate it! All of those things help other Bendy Baddies find us, and we would be thankful for your help.

    Episode Chapters

    (00:00) Intro

    (02:24) Medical Disclaimer

    (02:47) What is Pediatric Joint Hypermobility Syndrome

    (05:44) TL;DR of Hypermobility in Kids

    (12:35) What Organizations Are Working On

    (14:33) hEDS to PJHS Key Changes

    (18:03) Positives to New Pediatric Framework

    (22:14) Critical Discussion of the Changes

    (24:05) New PJHS Diagnostic Process)

    (34:00) Closing

    Show notes for this episode are available here.

    --- Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support
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    38 mins
  • 2.16 Why Get Diagnosed? - Part Two
    Jul 18 2024

    On this week's episode, the Two Bendy Mommas continue to discuss why they think it’s a smart idea to use your spoons to get diagnosed. They discuss some of the the benefits of going through the diagnostic journey, why diagnosis actually matters, and some personal insight to how their diagnosis has impacted their lives (and their Zebra offspring!).

    If you suspect an inherited connective disorder (such as the Ehlers-Danlos Syndromes), but haven't started on your journey yet, Luna and Shelli give an "EDS Overview" and cover the diagnostic process in Season 1 if you want to learn more about it.


    --- Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support
    Show More Show Less
    45 mins
  • 2.15 Why Get Diagnosed?
    Jul 11 2024

    On this week's episode, the Two Bendy Mommas discuss why they think it’s a smart idea to use your spoons to get diagnosed. They discuss some of the the benefits of going through the diagnostic journey, why diagnosis actually matters, and some personal insight to how their diagnosis has impacted their lives (and their Zebra offspring!).

    If you suspect an inherited connective disorder (such as the Ehlers-Danlos Syndromes), but haven't started on your journey yet, Luna and Shelli give an "EDS Overview" and cover the diagnostic process in Season 1 if you want to learn more about it.


    Show notes for this episode are available here.

    --- Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support
    Show More Show Less
    1 hr and 18 mins

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