NMOSD Your way Podcast - Australia

Written by: Alexion Astra Zeneca Rare Disease Business Unit
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  • Summary

  • The Your way Podcast series features Neuromyelitis optica spectrum disorder (NMOSD) patient ambassador Debbie Leticq, alongside healthcare professionals including neurologist Dr Lesley-Ann Hall, Specialist Nurse and Research Fellow, Dr Therese Burke, and psychologist, Dr Sally Shaw, who all share some deeply personal experiences about this rare, auto-immune condition. Their candid conversations shine a light on the day-to-day reality of living with NMOSD, provide some insights and advice to those who may find themselves either newly diagnosed or learning to live with NMOSD. If you would like more information about NMOSD, you can go to www.nmosdaustralia.org.au or you can find relevant support services on MS Australia’s website www.msaustralia.org.au which although specific to MS, could be of interest. The state and territory-based MS organisations offer referral advice and information, individual assessments and support, NDIS information, employment support and more to people living. To connect with your nearest state organisation, please visit: https://www.msaustralia.org.au/supports-and-services/ If you would like to connect with others living with NMOSD, you can join the NMOSD Facebook group https://www.facebook.com/groups/1563368187258977/?ref=share_group_link Each episode features balanced commentary from a healthcare professional’s perspective and does not feature any treatment or product recommendations. Information is intended for Australian residents only and is subject to all applicable laws and regulations. All advice is general advice only, and is not intended to replace the advice of a healthcare professional. Persons having any specific questions requiring diagnosis or treatment are advised to discuss with their healthcare provider.. All rights reserved. Alexion Pharmaceuticals Ltd, ABN 59 132 343 036. Level 4, 20 Rodborough Road, Frenchs Forest NSW 2086. March 2022. AU/Med NMOSD/0013.
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Episodes
  • Episode Seven - The Patient Perspective

    Episode Seven - The Patient Perspective
    Jun 29 2022
    Neuromyelitis optica spectrum disorder (NMOSD), can impact every patient differently. In this episode, Debbie invites two patients – Lynda and Erica – to the couch to talk about their own experiences with NMOSD and how they’ve coped with this rare condition.
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    38 mins
  • Episode Six - Taking back control

    Episode Six - Taking back control
    May 31 2022
    Experiencing a diagnosis of NMOSD can be a mix of relief but also concern. Learning how to adjust and manage your health and wellness can take some planning. Our podcast host Debbie Leticq is joined on the NMO couch by neuro-immunology nurse specialist and research fellow, Dr Therese Burke to talk about taking back control.
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    34 mins
  • Episode Five - Navigating relationships

    Episode Five - Navigating relationships
    May 24 2022
    Being diagnosed with a complex condition can be a difficult time for both the individual, but also to friends and family. Debbie and Dr Sally Shaw discuss some of those challenges in this episode, and share some insights and advice about how to work your way through the ups and downs.
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    36 mins

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