When my daughter lost her voice, it felt like a piece of our world went silent. The mystery deepened when traditional medical paths led to dead ends, nudging my husband and me to trust our intuition in a desperate search for answers. This podcast chronicles the unexpected turn our lives took when Spinal Muscular Atrophy (SMA) mixed with an overlooked allergy, and the revelation that something as mundane as toothpaste could shake our family's foundation. Join me, Erin Fulks, as I recount the emotional rollercoaster and the eventual breakthrough that brought my daughter's voice back into our lives.

This episode isn't just a personal narrative; it's a lesson in perseverance, in the subtleties of health that can easily be missed, and the power of parental advocacy. As I share the progress we've made through movement lesson therapies and natural supplements, I also peel back the curtain on the frustration of navigating a healthcare system that can sometimes leave parents feeling stranded. My mission is to empower other families with the knowledge and confidence to push for the care their children deserve, all while celebrating the victories, big and small, that come with raising a child with unique challenges.

Amidst the hustle of everyday life, take a moment to pause and tune into our newest episode of 'SMA it's not too late' podcast - a heartwarming story of courage and determination. It's about my six-year-old warrior, Julia, who confronts Spinal Muscular Atrophy (SMA) every day of her life. With her unstoppable spirit, watch how she turns an everyday chore into a monumental achievement, teaching us to celebrate the small victories in life.

Further, we delve into the emotional rollercoaster of being parents to a child combating SMA. Despite the trials and tribulations, seeing Julia participate in a slumber party with her cousins, preparing for her upcoming baptism, and being an integral part of regular life events is an indescribable joy. So, come, join us on this extraordinary journey which will transform your perspective on life and will surely touch your heart in unexpected ways. Don’t forget to subscribe to our podcast for more incredible and insightful stories about living with SMA.