Showing titles in People with Disabilities

Hilda’s family didn’t know she had muscular dystrophy. They just knew their preschooler was losing her ability to walk. But they were determined to find a cure. Being disabled in Cameroon meant not only obstacles to transport, but visits to diviners and evangelists, threats of sexual assault, discrimination, and a crisis of faith. Despite the hardship Hilda has faced, her family’s unwavering support and God’s unwavering grace have helped her persevere to become a national broadcaster.

Tara Sidhoo Fraser is thirty-one years old when a rare mutation in her brain causes a stroke. Awakening after surgery with no memory of her previous life, she attempts to piece it all back together through a haze of amnesia. Yet, as memories do begin to surface, they are seen through someone else's eyes—the person whose body she stole, whom she calls Ghost.

“Canal dói?” “O que é que eles fazem no Japão?” “Os Menudos são legais?” Stella Estrela não se dedica a responder nenhum desses questionamentos, mas a apresentar a autora dessa lista tão peculiar de perguntas. Stella nasceu com a síndrome de Williams-Beuren, uma desordem genética rara que impôs, de saída, enormes desafios a ela e a seus pais.

Escrito quando Naoki Higashida tinha apenas 13 anos, o conjunto de ensaios reunidos neste audiolivro conta, do ponto de vista do próprio Higashida, a experiência de ser autista. Preso em seu mundo individual, muitas vezes ele exibe comportamentos vistos como estranhos, peculiares, “inadequados”. Seja repetindo palavras e frases aparentemente sem sentido ou evitando contato visual com outras pessoas, Naoki tem uma enorme dificuldade de se comunicar e de socializar.

«Sono Rachele e ho 29 anni. A un mese dalla nascita, è stato detto ai miei genitori che avevo la fibrosi cistica, una malattia genetica degenerativa da cui non si può guarire. La malattia non si vede perché colpisce principalmente gli organi interni; tutte le secrezioni sono alterate e molto dense, il muco ristagna ed è difficile respirare. Quando sono stata invitata a un evento della Fondazione per la Ricerca sulla Fibrosi Cistica, mi sono chiesta: come faccio a unire la mia passione per i motori con quello che mi sta più a cuore?»

When Ellie Goldstein was first diagnosed with Down Syndrome, her mother was soon told that her new-born would amount to nothing. For 21 years and counting, Ellie Goldstein has been defying the odds and overcoming every hardship thrown at her. Told she wouldn't walk, Ellie has danced on mainstages. Told she wouldn't learn, she has gained a college education. And told not to dream, Ellie has gone on to become the first model with Down Syndrome to be photographed for Gucci and continues to change the face of fashion from the inside out in countless international campaigns.

Le 8 décembre 1995, à la suite d’un accident vasculaire cérébral, Jean-Dominique Bauby est plongé dans un coma profond. Quand il en sort, toutes ses fonctions motrices sont détériorées. Atteint de ce qu'on appelle le " locked-in syndrome ", il est littéralement enfermé à l'intérieur de lui-même ; il ne peut plus bouger, manger, parler ou même simplement respirer sans assistance. Dans ce corps inerte, seul un œil bouge.

From being a little girl in a village in China with polio to a tech executive at Apple, Libo Cao Meyers has had quite a journey in life—a journey steeped in rich family legacy and powered by determination, growth, and love. Over the years and the miles, she’s embraced her differences and has allowed no one—including herself—to set limitations on what she’s able to accomplish. But just because she’s been successful doesn’t mean it’s been easy. Not by a long shot.

This powerful, honest, hilarious and furious memoir from journalist and advocate Lucy Webster looks at life at the intersection; the struggles, the joys and the unseen realities of being a disabled woman. From navigating the worlds of education and work, dating and friendship; to managing care; contemplating motherhood; and learning to accept your body against a pervasive narrative that it is somehow broken and in need of fixing, The View From Down Here shines a light on what it really means to move through the world as a disabled woman.

Andrea Lytle Peet was thirty-three years old—an urban planner living in D.C., newly married, and a triathlete—when she received the death sentence of an ALS diagnosis (also known as Lou Gehrig's disease). After grappling with the fact that she will likely become paralyzed and die within two to five years, Andrea experienced an unexpected spark that changes her outlook in the most magnificent way.

Fin da quando era bambina, Benedetta si è sentita come la famosa sirenetta della favola di Andersen: costretta a rimanere sott'acqua, a osservare da lontano gli altri vivere quella vita che lei desiderava con tutta se stessa. Fino al momento in cui, proprio come la sirenetta, ha avuto la forza e il coraggio di salire in superficie. Lei però, per farlo, non ha rinunciato alla propria voce, anzi.

Andrew, 8, is autistic and bilingual. He speaks English and Chicken. With words limited by autism, Andrew lives in a fantastic world where chickens talk and superheroes come alive. But when he tells his pet chicken Frightful that his body is trying to kill him, it launches Andrew's family and an entire medical community into a decade-long quest for answers. This beautiful, fierce, and refreshingly honest memoir takes listeners on a mother's journey through the complex landscape of modern medicine to discover the healing bond between a boy and Frightful, the chicken who saves them all.

Jeremy Schreiber was on top of the world—athletic, newly married, successful. And then something went terribly wrong. In this moving memoir, he shares his journey after he received a terrifying diagnosis: ALS. As the devastating disease robbed him of movement and speech, he was abandoned by his wife and betrayed by a society that shuns people with disabilities. But it’s not all doom and gloom. He found love, support, and a powerful purpose. While fighting for his independence and then for his life, Jeremy gave his all to the ALS and disability communities.

Luisa L’Audace wächst als einziges behindertes Kind in ihrem Heimatdorf auf. Warum sie im Sportunterricht immer als Letzte gewählt wird, in der Pause nicht mitspielen soll und ihre Freundinnen plötzlich nicht mehr neben ihr sitzen wollen, versteht sie lange Zeit nicht. Während andere Kinder Freizeitbeschäftigungen nachgehen, verbringt Luisa viel Zeit in Krankenhäusern, bei Therapien und Spezialist*innen. Als sie mit 14 einen Rollstuhl bekommt, fühlt sie sich zum ersten Mal in ihrem Leben frei. Doch mit der neu gewonnenen Mobilität nehmen auch die Anfeindungen zu.

As a neurodivergent child in a hundred-year-old house, Zaji Cox collects grammar books, second-hand toys, and sightings of feral cats. She dances and cartwheels through self-discovery and doubt, guided by her big sister and their devoted single mother. Through short essays that evoke the abundant imagination of childhood, Plums for Months explores the challenges of growing up mixed race and low-income on the outskirts of Portland, Oregon.

Johann König verliert als Kind durch einen Unfall fast vollständig seine Sehkraft. Wie kann man sich Kunst erschließen, wenn man sich auf seine Augen nicht verlassen kann? Was ist Sehen überhaupt, wenn die Welt um einen herum verschwimmt? In seinem Buch "Blinder Galerist" beschreibt Johann König, wie es ihm gelang, die Welt und die Kunst neu wahrzunehmen. "Die Bilder, die im Kopf entstehen, sind genauso wichtig wie die Bilder an der Wand".

Giulia ha diciannove anni e davanti a sé una storia ancora tutta da scrivere e riempire di colori ed esperienze. Poi un motorino, una curva presa male in un pomeriggio qualunque, e la realtà che conosceva viene cancellata di colpo. Davanti a lei si apre un'altra vita, che include una nuova compagna di viaggio: una carrozzina. Nel corso di nove lunghi mesi in ospedale, Giulia deve imparare a guardare il mondo da un nuovo punto di vista, a muoversi, a sentirsi se stessa.

Sam always knew he was starting life on the back foot. When his parents split, Sam, his mother and his brother had to learn to survive in a world not built for single-parent families. Add to that Sam's diagnosis with a form of dwarfism and the odds seemed stacked against them. As surgeons kept breaking and resetting Sam's legs in attempts to keep him walking, disability and poverty collided, and it took all the family's strength not to crumple in the impact. In Broke, lawyer and disability advocate Sam Drummond weaves a poignant, stirring and deeply compassionate tale of life on the fringes.

When Emmett de Monterey is eighteen months old, a doctor diagnoses him with cerebral palsy. Words too big for his 25-year-old artist parents and their happy, smiling baby. Growing up in South East London in the 1980s, Emmett is spat at on the street and prayed over at church. At his school for disabled children, he's told he will be expelled if the rumours are true, if he's gay; at his mainstream school, teachers refuse to schedule his classes on the ground floor, and he loses a stone from the effort of getting up the stairs.