Chronic Illness Memoir

A silent epidemic of chronic illnesses afflicts tens of millions of Americans: These are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier.

John Lynch was a promising athlete, but at age 11 was struck by a crippling illness. He was diagnosed with juvenile arthritis (JA), a disease that affects 300,000 children, making them unable to live full-functioning, pain-free lives. John continued to seek new treatments, but not until age 53 was he given the “miracle drug” that enabled him to sustain a 30-year legal practice. During that time, he dedicated his life to helping others who suffered from JA and became a much-honored advocate for easing their distress.

On July 22, 2009, a special meeting was held with 24 leading scientists at the National Institutes of Health to discuss early findings that a newly discovered retrovirus was linked to chronic fatigue syndrome (CFS), prostate cancer, lymphoma, and eventually neurodevelopmental disorders in children. When Dr. Judy Mikovits finished her presentation the room was silent for a moment, then one of the scientists said, "Oh my God!" The resulting investigation would be like no other in science.

Dr. Judy Mikovits is a modern-day Rosalind Franklin, a brilliant researcher shaking up the old boys' club of science with her groundbreaking discoveries. And like many women who have trespassed into the world of men, she uncovered decades-old secrets that many would prefer to stay buried.

A Still Life is a story of illness and pain that rarely sees the light: illness and pain with no end or resolution; illness and pain that we must meet with courage, joy, ingenuity and hope. Against a world which values ‘feel good’ progress and productivity above all else, Josie sets out a quietly radical alternative: to value and treasure life for life itself, with all its defeats and victories, with all its great and small miracles.

One day, on her way to a date, Isabella Huffington gets hit by a bike. What begins as a concussion with a diagnosed recovery time of seven-to-ten days becomes more than two years of debilitating pain with no apparent end and a string of unhelpful doctor and specialist visits. In the wreckage, jobs are canceled. Leases are broken. There is no second date. What’s left is Isabella, her body, and her pain. Because the source of her pain cannot be located within the body, she is told over and over that her pain is psychosomatic. And Isabella believes it, over and over.

Allie Cashel has suffered from chronic Lyme disease for 16 years - but much of the medical community refuses to recognize her symptoms as the result of infectious disease. In Suffering the Silence: Chronic Lyme Disease in an Age of Denial, Cashel paints a living portrait of what is often called post-treatment Lyme syndrome, featuring the stories of chronic Lyme patients from around the world and their struggle for recognition and treatment.