Social Security Disability

Ben Mattlin lives a normal, independent life. Why is that interesting? Because Mattlin was born with spinal muscular atrophy, a congenital weakness from which he was expected to die in childhood. Not only did Mattlin live through childhood, he became one of the first students in a wheelchair to attend Harvard, from which he graduated and became a professional writer. His advantage?

Paralyzed from polio at 18 months, Judy Heumann began her struggle for equality early in life. From fighting to attend grade school after being described as a 'fire hazard' to later winning a lawsuit against the New York City school system for denying her a teacher's license, to leading the section 504 sit-in that led to the creation of the Americans with Disabilities Act, Judy's actions set a precedent that fundamentally improved rights for disabled people around the globe.

In 2016, a United Nations report found the UK government culpable for ‘grave and systematic violations’ of disabled people’s rights. Since then, driven by the Tory government’s obsessive drive to slash public spending whilst scapegoating the most disadvantaged in society, the situation for disabled people in Britain has continued to deteriorate. Punitive welfare regimes, the removal of essential support and services and an ideological regime that seeks to deny disability has resulted in a situation described by the UN as a ‘human catastrophe’.

In Disability Pride, disabled journalist Ben Mattlin weaves together interviews and reportage to introduce a cavalcade of individuals, ideas, and events in engaging, fast-paced prose. He traces the generation that came of age after the ADA reshaped America, and how it is influencing the future. He documents how autistic self-advocacy and the neurodiversity movement upended views of those whose brains work differently. He lifts the veil on a thriving disability culture showing how the politics of beauty for those with marginalized body types and facial features is sparking widespread change.

The first significant book on the history and impact of the ADA - the "eyes on the prize" moment for disability rights. The Americans with Disabilities Act (ADA) is the widest-ranging and most comprehensive piece of civil rights legislation ever passed in the United States, and it has become the model for disability-based laws around the world. Yet the surprising story behind how the bill came to be is little known.

Sabine Heinlein spent almost a year reporting at "The Farm", a program for mental patients at the notorious Creedmoor Psychiatric Center in Queens. Originally designed to teach its "members" confidence and skills by caring for animals and plants, the Farm had long become a dysfunctional hoarder's den. The patients sat idly on chairs in a grimy dayroom filled with the therapist's "collectibles" and garbage.