Showing results by author "Alexion Astra Zeneca Rare Disease" in All Categories

Il podcast gMG Your Way è una serie di otto puntate realizzato con il patrocinio e contributo dell’associazione pazienti Associazione italiana miastenia (A.I.M). Romina Gibertoni, segretaria di A.I.M, ci accompagnerà in un percorso di scoperta all’interno del mondo della gMG, ossia la miastenia gravis generalizzata. In ogni episodio, Romina sarà affiancata da persone che vivono e affrontano questa malattia ogni giorno, clinici, caregiver e altri membri attivi della comunità gMG, che, attraverso la condivisione delle loro storie, esperienze e professionalità ci aiuteranno a capire ...

The Your way Podcast series features Neuromyelitis optica spectrum disorder (NMOSD) patient ambassador Debbie Leticq, alongside healthcare professionals including neurologist Dr Lesley-Ann Hall, Specialist Nurse and Research Fellow, Dr Therese Burke, and psychologist, Dr Sally Shaw, who all share some deeply personal experiences about this rare, auto-immune condition. Their candid conversations shine a light on the day-to-day reality of living with NMOSD, provide some insights and advice to those who may find themselves either newly diagnosed or learning to live with NMOSD. If you would like ...

The NMOSD Your Way Podcast series features Neuromyelitis Optica Spectrum Disorder (NMOSD) patient ambassador, and host, Lelainia, alongside healthcare professionals, patient advocates, and caregivers. In each episode, participants share some deeply personal experiences about this rare, auto-immune condition. Their candid conversations unpack some of the mystery behind this little known condition and delve into the day-to-day realities of living with NMOSD. Participants also provide insights into living well, offering encouragement and information to others who may find themselves either newly ...